The parents of a woman living with Down syndrome say they have seen major changes in attitudes towards the condition during their daughter's lifetime.
"That's not got to do with any training or being a therapist, that's a nice, lovely person that appears either as your neighbour or someone that has just the most amazing heart," she said.
"It's a beautiful moment when you find those people that come into you into your life and are so supportive, and they've been there all Jo's life." Mrs Page said her family realised early on it was up to them to find out what services and support were available."When there is a diagnosis, you've got that grief component, no one deals with that except the families," Mrs Page said."So sometimes that lingers for families for a long time."According to National Disability Insurance Scheme statistics, more than 12,500 people in Australia list Down syndrome as their primary or secondary disability.
"Whether it's you having a disability yourself or a family member, you want to be in the driver's seat and be able to make those decisions for yourself but that choice is taken away when you're going down the road with a traditional provider," she said."So it's really important that you have that connection and that and that level of trust, with someone who's coming in and out of your home, especially with anything to do with personal care.
"People know what is important in her life, if John and I fall off the perch they know what's needed to still keep going."
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