Young caregivers “exist in the shadows,” offer crucial help

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Young caregivers “exist in the shadows,” offer crucial help
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As many as 10 million children in the U.S. may provide some form of care at home, according to researcher Melinda Kavanaugh. Some kids are the only caregivers patients have, while others fill in when visiting nurses or other help is not available.

Kavanaugh and other researchers say the number of young caregivers is growing, and they need support. Caregiving is a task that children like Ronan and Keaton take seriously and something that their mom hopes will shape them into empathetic, strong young men.

She holds up a laminated letter board and asks the kids to try. Evie silently points to every letter in her name.Keaton nods. Doctors diagnosed Rupesh Kotiya with ALS in October 2014, a month before his boys turned 4 and 2. Ronan and Keaton have no memories of him without the illness. Pandya, a senior director with the skin care and cosmetics company Mary Kay, has daytime and evening caregivers for her husband during the week. But she has no paid assistance overnight or on the weekends, so the boys have had to step up.Pandya tries to balance the boys’ caregiving with activities that offer some normalcy. Keaton takes tennis lessons and coding classes. Ronan plays striker on a youth soccer team.Both boys play piano, and Keaton paints prolifically.

Therapist Sarah Sutton recently had the boys draw up bucket lists of things they want to do with their dad. “We play out conflict. We play out resolution. We play out the stories that are going on inside us,” Sutton says.

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