MSMDS is caused by a rare genetic mutation. Muscles that operate largely involuntarily in healthy people are affected in organs.
"He was a normal kid. A normal healthy kid,' said his mom Tianne Hewitt. "And right before he turned a year old, in September, he was sick. And the doctor was like, 'his lungs sound great, but they look like crap.'""The doctors were terrified. They thought they did something," said the young boy's father, Nick Hewitt. "I didn't think anything of it. I said, 'this is normal for him.
"I was so excited when I had a boy, and you should see him hit a baseball. Like, he's pretty good. He has an arm like nobody's business," Tianne said. "And then we get this diagnosis and we're told he can't do contact sports. But he loves baseball. He loves it, and he's so good at it. It just broke my heart. Cause I was like, this just isn't fair. He can't be a normal kid.
"I just keep telling myself, 'right now, the place I need to be is at home.' so, that's where I am at. And sometimes I love it and sometimes I hate it," Tianne said.
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