Rare disease rap: Patient advocate writes song to raise awareness

Malaysia News News

Rare disease rap: Patient advocate writes song to raise awareness
Malaysia Latest News,Malaysia Headlines
  • 📰 6abc
  • ⏱ Reading Time:
  • 25 sec. here
  • 2 min. at publisher
  • 📊 Quality Score:
  • News: 13%
  • Publisher: 63%

After a successful career in radio, Romy Braunstein is returning to the microphone to raise awareness for rare diseases.

We're Philly Proud of a rare disease patient who wrote a rap to raise awareness for knowing the symptoms and getting diagnosed."I worked in radio for over 35 years until rare disease had other plans," said Romy Braunstein.

She recalls her symptoms including unexplained falls, chronic fatigue, and difficulty walking. Essentially, the disease interrupted communication between her nerves and muscles. "The medication has saved the quality of my life," she said. "And now I am fueled and passionate by that to tell everybody in every community to identify symptoms."

"Over the last 10 years, through my work experience and all my experiences, I wrote a rap song," she said.

We have summarized this news so that you can read it quickly. If you are interested in the news, you can read the full text here. Read more:

6abc /  🏆 250. in US

Malaysia Latest News, Malaysia Headlines

Similar News:You can also read news stories similar to this one that we have collected from other news sources.

New Hope for Treatment of Rare Metabolic Brain DiseaseNew Hope for Treatment of Rare Metabolic Brain DiseaseScientists reveal the results of a controlled clinical trial for a new drug to treat X-linked adrenoleukodystrophy. X-ALD is the most prevalent of the approximately 50 rare diseases that affect the white matter of the brain, referred to as leukodystrophies. The genetic damage in X-ALD is due to a d
Read more »

In photos: Parts of California blanketed in snow during rare winter stormIt’s been a week of howling wind and bitter cold in California as winter storms have dropped into the region from the far north.
Read more »

Los Angeles area still blanketed by snow in rare heavy stormLos Angeles area still blanketed by snow in rare heavy stormA powerful winter storm that swept the West Coast with flooding and frigid temperatures has shifted to southern California, swelling rivers to dangerous levels and dropping snow in even low-lying areas around Los Angeles
Read more »

Los Angeles area still blanketed by snow in rare heavy stormLos Angeles area still blanketed by snow in rare heavy stormLOS ANGELES (AP) — A powerful winter storm that swept down the West Coast with flooding and frigid temperatures shifted its focus to southern California on Saturday, swelling rivers to dangerous levels and dropping snow in even low-lying areas around Los Angeles.
Read more »

Jalen Brunson rare NY star who has been better than advertisedJalen Brunson rare NY star who has been better than advertisedIt was known Jalen Brunson would be good for the Knicks, but he has been even better than advertised.
Read more »

Pathways in Rare DiseasePathways in Rare Disease🦓 On Rare Disease Day, MedscapeCME & M4RareDiseases will launch a short video on the importance of understanding rare diseases. Look out for more insights from the campaign leading up to RareDiseaseDay2023. ➡️ Take a CME here:
Read more »



Render Time: 2025-03-04 01:15:52