Long COVID Is Keeping So Many Young People Out of Work:
Diana Berrent Güthe, the founder of the COVID-19 education and resource center, tells SELF that she’s seen this play out with plenty of the organization’s members. “One thing I can say for sure is people are having tremendous difficulty navigating the disability process,” she explains. “It’s complicated for lawyers, let alone anyone suffering from cognitive dysfunction, extreme fatigue, and tremendous pain.
Another major issue is that symptoms can come and go, which makes it hard for some people to predict when they’ll actually be feeling well enough to work. “This is a real shade of gray,” Güthe says. “They don’t know whether going to work on Tuesday may prevent them from going to work on Wednesday. People have good days and bad days, good weeks and bad weeks.
People with long COVID have typically found that “working collaboratively with their employer to structure their return to work in a way that is manageable for them” is one of the best accommodations they can ask for, Andrew Wylam, a lawyer and the cofounder and president of, a nonprofit organization that supports people who have been impacted by COVID-19, tells SELF. “Gradual return to work is helpful, along with flexible hours and remote options,” he says.
Wylam says that it’s crucial for people with long COVID to “maintain open, constant communication with” their employer and supervisor about their symptoms and limitations. Of course, not every employer is flexible or even willing to make accommodations for people with long COVID. If you think you qualify for disability financial assistance and you’re struggling to figure out the system, Wylam suggests consulting a lawyer, if you can.
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