Families celebrate as life-extending cystic fibrosis drug subsidised for children

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Families celebrate as life-extending cystic fibrosis drug subsidised for children
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Trikafta was added to the pharmaceutical benefits scheme for people over 11 years of age a year ago. Now, it will be available at an affordable price for younger children too, in a hard-fought win for families.

In November, the Pharmaceutical Benefits Advisory Committee recommended dropping the age patients could access the subsidised treatment to six years of age.on the issue, this morning families like Ms Sewell's learnt that from the May 1, the drug will be added to the PBS for eligible children aged six and over.

She said the medication, from pharmaceutical company Vertex, is a triple-combination therapy, described as "the closest thing to a cure" for people with the condition. In a media release, federal Health Minister Mark Butler confirmed that on the PBS, the drug would cost a maximum of $30 per script, or $7.30 with a concession card.

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