Black women are missing from breast cancer tumor data. And that may be killing them.

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Black women are missing from breast cancer tumor data. And that may be killing them.
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A new study may help show why Black women die more often from breast cancer, and it highlights the need for more diversity in clinical trials.

“There's underrepresentation in these data sets that then are used for treatment recommendations,” said Vivian Bea, a breast cancer specialist surgeon at Weill Cornell Medicine in New York City.“In order for precision medicine to really be equitable, to really transcend or not just be applicable to one race or ethnicity, we really have to put our heads together and find ways in which we can increase clinical trial enrollment,” Bea said.

“Clinical trials matter,” she said. “You have to have representation in order to make these treatment recommendations for precision medicine to work.” “The cause of higher mortality in Black women is multifactorial,” she said. “We have to continue to put these pieces of the puzzle together to determine why that disparity exists so that we can then combat it. This is one small piece of the puzzle that is highlighting that molecular factors may be contributory.

Dr. Nikhil Wagle directs Count Me In, a nonprofit that allows patients to share medical information, experiences and samples to propel research.

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