A Day in the Life With Crohn’s Disease

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A Day in the Life With Crohn’s Disease
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For CrohnandColitisAwarenessWeek, Kristen offers a surprising look into her daily life with Croh'n's.

By Kristen Weiss Sanders, as told to Barbara Brody

I've had many surgeries over the years, so my intestines are much shorter than they should be. For a while I had a J-pouch, which collects waste in an internal reservoir so you can still have bowel movements normally. But I eventually needed to get an ostomy. It’s an opening in your abdominal wall that a small piece of intestine, called a stoma, passes through. I nicknamed my stoma Roo, as in kangaroo, because it empties into an external ostomy pouch.

I get my daily oral medications packaged by the pharmacy into"morning" and"evening" packets, and I use an app to remind me to take them. These drugs help with inflammation, ease nausea, and prevent migraines that I've had since I was a child. I also infuse a biologic drug, vedolizumab , into my port every 8 weeks.

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