Tom Frey became sick years after working in the toxic dust and smoke: It's like 'a fire in my lungs.'
— a fire in my lungs. When I was first diagnosed in November 2016, it was a shock. It’s a terminal disease.
Then, I found other people with the disease and I found a specialist. That’s how I started getting back into somewhat of a normal way of life, trying to live with the disease. It took a while in pulmonary rehabilitation to get to this point. The pile of problems just got a lot bigger with COVID-19. Something gave me pneumonia in January of 2020. I don't know if it was COVID, but I was lucky to get out of the hospital from that one. I was scheduled for a lung transplant last year, but it was canceled due to COVID. It's still up in the air.In August 2021, I went to see my pulmonologist and I had lost 10% lung function in six months, so overall, it's probably below 50% now. I'm starting to feel a little more tired.
You come into my house it's like a hospital almost with the machines and pill bottles. Since my lungs are going, my heart is getting affected. But I'm lucky to be alive. Lucky to be here. I take life one day at a time. I'm in the bonus rounds here.Courtesy Pulmonary Fibrosis Foundation, I really shut down and keep to myself to just mentally deal with what's going on. I've been in touch with a friend who's got stage 4 pancreatic cancer.
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